I Am A Survivor

If you are reading this, you have survived something that most people do not. A sudden cardiac arrest stopped your heart. Something, or someone, brought you back. That is extraordinary, and it changes everything.

Recovery from a sudden cardiac arrest is not simply a matter of the heart healing. The physical challenges are real, but the emotional ones can be harder and longer. Many survivors describe the weeks and months after their arrest as more difficult than the event itself. You may be dealing with fear, uncertainty, exhaustion, grief, and questions your medical team does not have time to answer fully.

You are not alone in any of it. This page is a starting point.

What to expect in the early days

The first weeks after a cardiac arrest can be disorienting. You may be discharged from hospital feeling physically fragile and emotionally shaken. Some survivors describe a sense of unreality. Others feel the weight of what happened very sharply from the start.

Common experiences in the early weeks include:

  • Fatigue that feels out of proportion to what you are doing
  • Difficulty sleeping, vivid dreams, or waking in the night
  • Intrusive memories or flashbacks of the arrest
  • Heightened awareness of your heartbeat, sometimes called cardiac hypervigilance
  • Fear that it will happen again
  • Difficulty concentrating or remembering things
  • Feeling tearful, flat, or emotionally detached

These are normal responses to an abnormal event. They do not mean you are weak or broken. Most ease with time, though some benefit from professional support. Our page on the emotional roller coaster of cardiac arrest survival goes into this in more detail.

The emotional impact of surviving cardiac arrest

Emotional recovery is often the harder and longer journey. Anxiety, post-traumatic stress, and depression are all recognised clinical responses to cardiac arrest. They are not character flaws. They are your nervous system responding to something genuinely life-threatening. Each has effective treatments, and you do not have to simply wait them out.

Anxiety and fear

Fear of another arrest, constant body-checking, panic attacks, and avoidance of activities are all common. Anxiety is the most frequently reported emotional consequence of cardiac arrest.

Post-traumatic stress (PTSD)

Intrusive memories, nightmares, emotional numbness, and hypervigilance can all be signs of PTSD after a cardiac arrest. It is treatable. Effective therapies include EMDR and trauma-focused CBT.

Depression and low mood

Low mood, loss of interest, fatigue, and withdrawal often arrive after the initial shock of survival has passed. Depression is common and treatable. Your GP is the right first step.

Other emotional issues

Anger, grief, loss of identity, and changes to close relationships are all part of the survivor experience. Self-help resources and peer support can help alongside formal treatment.

Your ICD and physical recovery

Many cardiac arrest survivors leave hospital with an implantable cardioverter defibrillator (ICD), a small device that monitors their heart rhythm and will deliver a shock if it detects a dangerous rhythm. If you have one, you will have questions about what it means for your daily life.

The short answer is that most people live full, active lives with an ICD. There are some practical adjustments around driving, certain equipment, and some sports. Your cardiologist or cardiac nurse specialist will go through the specifics with you. Our ICD information pages cover the details.

Cardiac rehabilitation is available to cardiac arrest survivors and is worth asking your team about if you have not been referred. It combines physical and psychological recovery support, and evidence consistently shows it improves outcomes.

Getting back to daily life

Practical concerns arrive quickly after a cardiac arrest. Driving is one of the most common. There are specific DVLA rules for survivors in the UK, and these depend on the type of rhythm involved, whether you have an ICD, and your licence category. Our page on driving and the DVLA after cardiac arrest covers this in detail. Do not drive until your cardiologist and the DVLA have confirmed it is safe to do so.

Insurance also needs attention after a cardiac arrest. Life insurance, travel insurance, and car insurance all need to be disclosed to and reviewed with your insurer.

Your family and those around you

A sudden cardiac arrest does not happen to one person in isolation. The people around you, whether they witnessed the event, performed CPR, or simply got the phone call, are affected too. We call them co-survivors because they are not simply bystanders. They carry their own fear, trauma, and adjustment challenges, and they are equally entitled to support.

JOIN US

You do not have to do this alone

Sudden Cardiac Arrest UK is a peer support community of thousands of survivors, co-survivors, and bereaved families across the UK. Many of us have been exactly where you are now. Joining is free, and it makes a difference.

Join our community and connect with people who truly understand.

Frequently asked questions

What do Abbott (formerly St Jude) ICD alerts mean?

Abbott ICDs (formerly St Jude Medical) have traditionally alerted you by vibration rather than sound. A typical pattern is a six-second vibration, then sixteen seconds of silence, then a further six-second vibration, then ten seconds of silence, after which the pattern repeats.

Historically, many Abbott devices had no patient alert at all. The newer Gallant models have added an audible alert facility, so a Gallant device may beep as well as vibrate.

If you feel an unexpected vibration from your device, contact your ICD clinic, and ask for a demonstration at your next appointment. Our ICD sounds and alerts page explains the alerts by manufacturer.

Category: Implantable Devices

What do Boston Scientific ICD alert sounds mean?

Boston Scientific ICDs use audible alert tones. A typical alert is a set of sixteen tones that repeats roughly every six hours until the device is checked.

It is worth knowing that having an MRI scan permanently disables the beeper on these devices. If that applies to you, your clinic will usually recommend relying on remote monitoring so that alerts are still picked up.

If you hear an alert, contact your ICD clinic. To hear what your device sounds like, ask for a demonstration at a clinic visit. Our ICD sounds and alerts page has more detail.

Category: Implantable Devices

What do Medtronic ICD alert sounds mean?

Medtronic ICDs can alert you with both audible tones and vibration. A common pattern is a six-second vibration, then sixteen seconds of silence, then a further six-second vibration, then ten seconds of silence, after which the pattern repeats.

A solid, continuous tone is the magnet alert tone, which you may hear when a magnet is placed over the device. These tones are programmable, so your clinic can adjust them or switch them off, and your own device may sound different.

If you hear an alert, contact your ICD clinic. To hear exactly what your device sounds like, ask for a demonstration at your next appointment. Our ICD sounds and alerts page has example recordings.

Category: Implantable Devices

Do all ICDs make sounds, or does every ICD beep?

No. Whether your ICD makes a sound depends on the manufacturer, the model, and how it has been programmed. Some devices beep, some vibrate, some do both, and some make no patient alert at all.

For example, Medtronic devices use audible tones and vibration, Boston Scientific devices use audible tones, and Abbott devices have historically used vibration, with audible alerts on the newer Gallant models. Biotronik and Sorin/Microport devices do not emit patient alerts and rely on remote monitoring instead.

If you are not sure what your device does, ask for a demonstration at your next clinic appointment. Our ICD sounds and alerts page lists the alerts by manufacturer.

Category: Implantable Devices

What does a low-battery alert from my ICD mean?

A low-battery alert means your ICD’s battery is approaching the end of its life. The device emits a warning sound periodically, usually at the same time of day, so you may notice it as a regular daily beep.

This warning typically begins three to six months before the battery is depleted, so it is not an emergency. Contact your ICD clinic so they can check the device and plan a replacement, known as a generator or box change.

Our ICD sounds and alerts page explains the common alert types in more detail.

Category: Implantable Devices
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