FAQ

Good follow-up care after cardiac arrest should be tailored to the individual, rather than relying on a standard set of tests that produce a single summary score.

For older survivors, good follow-up would include a careful assessment of physical functioning — the ability to move around, carry out self-care, manage daily activities and live independently. Identifying these difficulties early means support and adaptations can be put in place before problems become entrenched.

For younger survivors, good follow-up would include deliberate, compassionate attention to psychological wellbeing — anxiety screening, assessment for PTSD and depression, and support for returning to work and social life. These are not optional extras; they are core outcomes that matter as much as cardiac function.

For all survivors, good follow-up should treat quality of life as having several distinct dimensions — physical, psychological, cognitive and social — not as a single measure. It should continue beyond the first few months, since some effects of cardiac arrest emerge or persist over a longer period.

The RCUK Survivor Quality Standard, published in 2024, sets out a framework for exactly this kind of follow-up. If you are not receiving structured review that addresses your whole experience, it is worth asking your GP or cardiac team what is available to you.

Category: Recovery

The underlying findings are broadly relevant to UK survivors. The physical and psychological challenges of recovering from cardiac arrest are not specific to any country, and the core patterns are consistent with research from across Europe and beyond.

Older survivors everywhere face the risk of increasing physical limitations. Younger survivors everywhere can struggle with anxiety and psychological adjustment following a traumatic cardiac event. These are consequences of the biology of cardiac arrest and of what it means to face your own mortality at different stages of life, not features of any particular healthcare system.

The specific numbers in the Danish study may vary slightly in a UK setting, and differences in healthcare provision, rehabilitation access and follow-up models will shape how well survivors are supported. But the fundamental message — that recovery looks very different depending on age, and that a single overall measure is not sufficient — applies directly here.

The RCUK Survivor Quality Standard and international guidelines from the European Resuscitation Council, both of which are relevant to UK practice, reflect similar principles about the need for personalised, domain-specific follow-up care.

Category: Cardiac Arrest

Yes, based on current research and international guidelines, they should.

Mental health screening — including assessment for anxiety and depression — is recommended as part of post-cardiac arrest follow-up care by the National Institute for Health and Care Excellence (NICE) and the European Resuscitation Council. Psychological distress is common after cardiac arrest, affecting an estimated 15 to 30% of survivors, and can be just as disabling as physical limitations.

In practice, many follow-up appointments focus primarily or exclusively on cardiac function — the echocardiogram, the device check, the heart rhythm. While these are important, they tell your clinical team very little about how you are managing your anxiety, your sleep, your ability to return to work, or your fear of a recurrence.

If your appointments have not included a conversation about your mental health or psychological wellbeing, it is worth raising this yourself. You might say: “I’ve been struggling with anxiety since the arrest” or “I don’t feel like myself — is there support available?” Your GP, cardiologist or cardiac rehabilitation team can make referrals to psychological support services.

You do not have to wait until things reach crisis point. Raising concerns early leads to better outcomes.

Category: Cardiac Arrest

This is exactly the point that recent research has highlighted. When clinicians use a single overall score to measure how a survivor is doing, it can average out very different problems and make everyone appear roughly similar on paper.

In a large Danish study of over 2,500 survivors, the overall quality-of-life scores varied little between age groups. On a summary measure, older and younger survivors looked broadly comparable. But when researchers examined individual areas — mobility, self-care, usual activities, anxiety and depression — clear and significant differences between age groups appeared.

As the study’s commentators put it, summary measures can make meaningfully different survivorship burdens appear deceptively similar. A 67-year-old with limited mobility and a 32-year-old with persistent anxiety may score identically on a composite scale. But they are not having the same experience of survival.

This matters practically. If your doctor sees a reassuring overall score and moves on, real difficulties in specific areas can go unaddressed. If you feel something is wrong but have been told your scores look fine, you are right to push for a more detailed conversation about how you are actually living day to day.

Category: Recovery

After a cardiac arrest, both the body and mind go through a significant recovery process. The difference age makes comes down to what each group is most vulnerable to at that stage of life.

For older survivors, a cardiac arrest can accelerate or worsen physical decline that was already beginning. Mobility, self-care and the ability to carry out daily activities can all become noticeably harder. These changes may seem gradual, and it is not always easy to connect them clearly to the arrest, particularly when overall clinical scores look reassuring.

For younger survivors, the psychological impact tends to dominate. Being young and otherwise healthy, then experiencing a sudden, life-threatening event, can trigger intense anxiety and a lasting fear that it will happen again. There is also the disruption to work, family life and long-term plans that older survivors may be less reliant on in the same way.

A major Danish study of 2,552 survivors found that older survivors (particularly those over 75) reported significantly higher rates of physical difficulty, while those under 35 showed anxiety levels of nearly 30%. These are genuinely different experiences of the same event, shaped by age and life stage — and they call for different types of support.

Category: Cardiac Arrest

Cardiac rehabilitation (cardiac rehab) is a structured programme combining exercise, education, and psychological support to help people recover after a cardiac event such as a heart attack, cardiac arrest, or heart surgery. It is delivered by a multidisciplinary team and is typically offered as a course of weekly sessions over 6–8 weeks.

If you have survived a cardiac arrest, cardiac rehabilitation is recommended and you should be offered a referral by your cardiac team or GP. Evidence shows that it reduces mortality, improves cardiovascular fitness, reduces anxiety and depression, and helps people return to work and normal activities with greater confidence.

Cardiac rehab programmes typically include supervised, gradually increasing physical exercise tailored to your individual fitness and heart condition; education sessions covering topics such as medications, diet, managing risk factors, and understanding your condition; and psychological support addressing anxiety, mood, and adjustment to life after a cardiac event.

If you have not been referred to cardiac rehabilitation, ask your GP or cardiologist. Some programmes are also available online or as hybrid models. The British Heart Foundation’s Cardiac Rehab service finder can help you locate programmes near you.

Category: Psychological Support

Several routes to psychological support are available after cardiac arrest.

Your GP is the first point of contact. They can assess your mental health, prescribe medication if appropriate, and refer you to talking therapy. In England, NHS Talking Therapies (formerly IAPT) provides free CBT, counselling, and other therapies, usually without a long wait. You can also self-refer to NHS Talking Therapies online without going through your GP first.

Your cardiac team may also be able to refer you to a clinical psychologist or cardiac rehabilitation programme. Cardiac rehabilitation often includes a psychological component alongside exercise and education, and is recommended for cardiac arrest survivors.

For more specialist support — for example, if you have complex PTSD, severe depression, or significant cognitive impairment — your GP can refer you to community mental health services or a neuropsychologist.

Peer support — connecting with other survivors and co-survivors who understand the experience from the inside — is highly valued by many people after cardiac arrest. Sudden Cardiac Arrest UK can connect you with peer support resources and a community of people who have been through similar experiences.

For co-survivors, the same routes apply. You do not need to have been the patient to deserve psychological support.

Category: Cardiac Arrest

Recovery from cardiac arrest is highly individual, but most survivors experience recovery as a gradual process that continues for 12 months or more — not a single moment of being "better."

Physical recovery from the cardiac arrest itself and any procedures (such as ICD implantation) typically takes weeks. Cognitive recovery — improvements in memory, concentration, and mental fatigue — often continues over the first year, with many survivors noticing meaningful improvement month by month. Psychological recovery, including processing the trauma of the event and adjusting to life with an ICD, can take longer and is not always linear.

Factors that affect the pace and extent of recovery include how long the brain was without oxygen during the arrest, how quickly CPR and defibrillation were given, the underlying cause of the arrest, age and general health, and access to rehabilitation and psychological support.

It is important not to compare your recovery to someone else’s. Many survivors make an excellent recovery and return to work, exercise, and a full life. Others are left with lasting cognitive or physical effects that require longer-term support and adjustment. Both experiences are valid.

If you feel that your recovery is not progressing or that you are struggling with the psychological impact, talk to your GP or cardiac team. Cardiac rehabilitation, neuropsychological support, and talking therapies can all play a role.

Category: Cardiac Arrest

Yes. Exercise is actively encouraged for most people with ICDs. Physical activity supports heart health, mental wellbeing, and recovery. An ICD is not implanted to limit you — it is there to protect you if a dangerous arrhythmia occurs.

The type and intensity of exercise that is appropriate depends on your underlying condition and your cardiologist’s guidance. Most people can resume moderate exercise such as walking, swimming, and cycling after a full recovery from the implant procedure. Some may be advised to avoid very high-intensity exercise or competitive sport, particularly if they have an exercise-triggered arrhythmia condition.

Cardiac rehabilitation is an excellent starting point for rebuilding fitness safely after cardiac arrest or ICD implantation. Ask your GP or cardiac team for a referral.

Category: Implantable Devices