If I need an ICD, does that mean my family will need cardiac screening?

Not automatically, but it depends on why you have an ICD. If your device was implanted following a cardiac arrest or arrhythmia caused by an inherited condition such as HCM, Long QT Syndrome, Brugada Syndrome, CPVT, or ARVC, then your first-degree relatives should be offered cardiac screening. These conditions can run in families and may be present in relatives who have no symptoms at all.

Family screening is arranged through an inherited cardiac conditions (ICC) clinic. Your own cardiologist can make a referral, or your relatives can ask their GP to refer them. Screening typically includes an ECG and echocardiogram, and may include an exercise stress test or genetic testing depending on the condition involved.

A positive finding in a family member does not automatically mean they will need an ICD. Treatment depends on the condition, the individual’s risk profile, and their clinical presentation. Some family members will need no treatment at all; others may be started on medication or monitored regularly.

If your ICD was implanted for a reason unrelated to an inherited condition, such as heart failure following a heart attack, routine family screening is not usually indicated, though your cardiologist will advise.

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