The ICD took a lot to come to terms with. In my angry stage of recovery, 3 to 6 months, I just wanted to rip it out of my chest, I felt out of control and scared this thing would shock me at any moment, but since, I rarely feel it. It sits perfectly down that it has found a comfortable place, I sleep well with it, and only occassionly feel pain when my seat belt rubs on it in the car. Driving ban was hugely annoying. DVLA are terrible! They are extremely slow and eventually I received my driving licence back within 9 months. First drive was extremely scary, especially being alone with strangers, my thoughts were ‘what if I have another SCA, I will be with strangers, will people know where I am?’ Now so happy to just do it. Tiredness is always an issue, but just try to rest more, ignore anybody else, if you need to, just do it. Medication has been a problem, unfortunately for my condition I am only recommended to have 2 types, one was not successful for me, and the other has been difficult to obtain by pharmacies, so every time I need a supply, I do go through the worry of topping up.

Judy,  39, 3 years

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