When you’ve had an SCA it’s more than likely that previously you knew nothing about them, I know I certainly didn’t. Probably the most famous case in the UK where someone has survived is Fabrice Muamba’s in 2012. I knew of it, but I didn’t really know any of the details apart from he was “dead” for quite awhile and had to retire because of it. Well, things are different since I’ve had one! I’ve looked at many relevant websites over the past couple of years and thought I better start to note them down as others may find them helpful.
I’ve made a start and you can see them at the useful links page
The list includes the big organisations, little charities, stuff on ICD’s, AEDs and lots more!
Of course I’ve probably missed loads and so if you know of any that are relevant please let us know!
After our first meet-up in February 2015, I realised I was not alone. It was the first time since my cardiac arrest the previous year that I had spoken face-to-face with someone who had experienced what I had. This was also true for my wife, who also happened to be my lifesaver. From that meet-up, the idea of SCA UK was born. Since then, we have achieved a considerable amount, primarily providing information, resources and support to others in a similar situation but also raising the profile of survivorship and the need for better post-discharge care. We are starting to get traction in this, and with the formation of the charity, I genuinely believe we have a bright future ahead and will make a significant difference in the lives of many who join our ranks.